The 11th motorcycle ride to benefit kids with epidermolysis bullosa (EB) will be held Saturday, Oct. 4.

The group Kisses for EB oversees the excursion, which will begin and end at the Refton Fire Company, 99 Church St., Refton. Dana Cedeno began the charity ride after her grandson Kiba was born with EB. "My husband (Jody) and I both ride motorcycles," Dana said. "We thought it would be fun to put together a motorcycle ride."

People can preregister by going to http://www.kissesforeb.com or visiting the Facebook page Kisses for EB. Registration on the day of the event will begin at 8 a.m.

The ride will begin at 9:45 a.m. and wind through southern Lancaster County and go through two covered bridges. The lone stop will take place at the Slumbering Groundhog Lodge where participants will pose for a group photo and have the opportunity to take photos with Kiba.

The event will be held rain or shine. If there is severe weather, the food will be provided and the motorcycle trivia contest will still occur, and the ride will be rescheduled.

The menu will consist of barbecue chicken, pulled pork, baked potatoes, baked beans, cole slaw, and drinks. Anyone who does not wish to ride can still participate in the trivia contest and enjoy the meal and should arrive at the Refton fire hall at 12:30 p.m.

EB is a rare and painful skin condition that causes fragile skin to blister and tear from minor friction or trauma. Dana said six kids in the county have been diagnosed with EB.

"EB is a genetic mutation that affects the mucous membrane, your whole body. Your skin is your largest organ, so basically any type of friction causes the skin to (come) off," said Kiba's mother, Ashley. "It affects everything in your body down to your liver, your kidneys, your heart."

Kiba, a fifth-grader at Conestoga Elementary School, loves the ocean, camping, driving a four-wheeler, and riding on his brother Caleb's motorcycle. "Kiba is far exceeding our expectations," said Ashley. "They told us, don't expect him to live more than a year. Every day is like a blessing because he is still here with us. He has like improved a lot since he was little. He does have his setbacks like everybody has their own setbacks. But he just, he pushes on, and he even gives people adults courage, so he's a trooper, for sure."

Ashley is proud of her mother's efforts. "It means a lot to me because (Dana) was able to bring a community of people together to raise awareness for something," she said. "For your mom be able to put together a foundation and to put together something that will help other families is just mind blowing. It's amazing."

Dana stated that it takes a team to make the event happen. "We want to raise awareness (of EB), and then we want to bring assistance," Dana said. "We have a couple that has been with us on all but two rides, and they're the first ones to sign up as soon as we post it, and they're great. We have another couple from Chester County that comes up, and she'll help donate baskets and different things. It takes a small community to put this together, so you have people doing flyers, you have people getting donations, then my husband is the leader of the pack on the ride. It takes more than one hand to put this whole thing together."